ACEMANNAN AND SICKLE CELL DISEASE
We have been in existence for over five years now and we are registered as a 501-c3 tax-exempt organization in both the USA and Nigeria. We also have a Memorandum of Understanding (MOU) with the Ministry of Health in Nigeria and approval to do research in government-owned hospitals.
Through our work, we have been able to prove anecdotally that children and adults with Sickle Cell Disease (SCD) can see significant improvements in their quality of life. These improvements have never before been seen in Nigeria, which has the highest number of cases of SCD in the world. Click here to view sample video testimonials from our patients:
In younger children (1- 6 years of age), a crisis usually occurs in one of two ways:
- Sudden, excruciating bone pains – especially in the small bones of the hands and feet – otherwise called bone pain crises, or
- Sudden loss of blood volume, either by spontaneous large-scale disintegration/break up of red blood cells, or by sudden sequestration (or pooling) of blood into organs like the liver and spleen.
The former requires the infusion of fluids, pain relief, sedation, and treatment of infections. The latter requires, in addition, BLOOD TRANSFUSION. Both cases usually require hospital admission, sometimes for days.
We propose to examine the role of the aloe vera leaf extract Acemannan to improve the quality of life and reduce complications of sickle cell disease patients. In addition, we also aim to establish it as an adjunct in the management of sickle cell disease.
The choice of natural products for the management of different conditions is increasing worldwide due to the effectiveness, affordability, and fewer side effects of such treatments.
Aloe vera is one of the most popular medicinal plants, widely used for the prevention or treatment of some cancers and skin, metabolic, and cardiovascular diseases throughout the world.
Christopher is a 7-year-old boy who has undergone transfusion and experienced frequent crises before. After seven months with the foundation, he has not experienced any crises
Pricilla has improved since joining the foundation. There has been less fatigue and she can now use her left hand better than before.
There has been no crises since coming to the foundation. She can sleep and eat well now unlike before
– Safiya Usman’s Sister
We will be working with a company called Alovea, to study the effects of Acemannan (an aloe vera extract) on improving the quality of life of children between the ages of 6 months and 12 years – with moderate to severe forms of sickle cell disease.
We will work with government hospitals in Nigeria, and at the end of the six-month process, we hope to prove the benefits of the supplement on children with sickle cell disease.
We want to raise $199,000 to help about 300 children living with moderate to severe sickle cell disease.