For the 2024 World SCD Day, Brain and Body Foundation organized a series of impactful activities to mark the day, which took place on Wednesday, 19 June 2024, and Saturday, 22 June 2024. Below is a detailed account of the events that unfolded:

World SCD Day 2024 Symposium

On Wednesday, 19 June 2024, BBF help a cornerstone event featuring a keynote address by Dr. Juliana Lawson, Chief Consultant Paediatrician at Zankli Medical Centre, Abuja. Dr. Lawson, a renowned expert in sickle cell disease, delivered an enlightening speech on “Breaking the Cycle of Pain: Exploring New Frontiers in Sickle Cell Treatment and Management.” Her insights and expertise provided valuable information on the latest advancements in SCD treatment and management, inspiring attendees to further the cause of improving the lives of those affected by this condition.

Engaged attendees during the World SCD Day symposium, showcasing their commitment to raising awareness.

Dr. Juliana Lawson giving her keynote speech at the World SCD Day symposium

Panel discussants at the World SCD Day symposium. From Left to Right: Rabi Maidunama, Founder MAISCEF, Dr. Julian Lawson, Executive Director of Zankli Medical Centre, and Shehu Mohammed, Founder of SOM Foundation, sharing valuable insights on SCD management.

Remarks from the Speakers

Keynote Speaker, Dr. Juliana Lawson discusses the progress in Sickle Cell treatment in Nigeria.

Panel Discussant, Shehu O. Mohammed shares his inspiring story as a sickle cell warrior.

Panelist, Rabi Maidunama, a Sickle Cell Warrior and Advocate, stresses the need for better medical policies for people with SCD.

Photos of BBF team and participants at the World SCD Day symposium to support the fight against sickle cell disease.

Photos of our Head of Operations, Daniel Bowman, along with other special guests at the symposium; in the media grid sequence, from left to right: Mr. Patrick Itah, Finance Director of BBF, Dr. Juliana Lawson, Executive Director of Zankli Medical Centre, Mr. Shehu Mohammed, Founder of SOM Foundation, and Dr Jone-Clever Patrick, BBF Clinic Volunteer.

Charity Red Walk

On Saturday, 22 June 2024, the 7km Charity Red Walk, was a special event aimed at advocating for individuals with Sickle Cell Disease and raising funds toward our goal of 30,000,000 NGN (thirty million naira) to ensure that these children receive the essential medications they need. Participants walked from Area 1 Roundabout to Millennium Park, Maitama, showcasing their commitment to the cause. The funds raised will significantly impact the lives of these young individuals and their families, helping to alleviate the pain and challenges associated with sickle cell disease.

These activities not only raised awareness about sickle cell disease but also brought together a community dedicated to supporting those affected by SCD. Through the symposium, charity walk, and health fair, Brain and Body Foundation succeeded in making a tangible difference in the lives of many, highlighting the importance of continued efforts in the fight against sickle cell disease.

Smiles all around as participants at the 7k charity walk marching towards the finishing line, united in the fight against sickle cell disease.

Community Outreach and Health Fair

On Saturday, 22 June 2024, the Community Outreach and Health Fair provided free medications, consultations, health screenings, genotype testing, and educational workshops for the local community. This event focused on the management, awareness, and prevention of sickle cell disease. It was a comprehensive effort to support and educate the community, offering practical assistance and valuable knowledge to those in need.

Enjoy these highlights showcasing the impactful moments and shared experiences in the video below.

Sights and Sounds of the 2024 World SCD Community Outreach and Health Fair, which brought together individuals with Sickle Cell Disease, beneficiaries, team members, volunteers, and partners.

Healthcare professionals offer free consultations and medications to attendees at the community health fair.

Director of Operations, Daniel Bowman, discusses BBF’s goal of addressing sickle cell disease through improved policies, cutting-edge research, and compassionate care for those living with the condition.

Heartwarming photos of BBF staff and volunteers who came together showcasing the power of community support.

Testimonial Reports

Comments from patients and caregivers at the World SCD Community Outreach

Meet Jesudimininu and Ewaogojesu Ajibade, aged 6 and 4 respectively, with sickle cell disease. Before their first BBF clinic visit, 4-year-old Ewa faced frequent, severe crises, often requiring hospitalization. Dimininu faced chronic stomach pain and fatigue, affecting her school performance.

Following months of free medications at the BBF Clinic, Dimininu’s pain has eased, and Ewa’s crises have notably decreased. Both sisters have made remarkable progress, showing significant health improvements.

Meet Prosper Gideon, an 11-year-old Boy with Sickle Cell Disease. He suffered from severe pain and swelling in his stomach, hands, and legs, as well as fatigue and week-long crises that kept him out of school.

After months at the BBF clinic, Prosper is now pain-free, with reduced crisis frequency and severity. He is stronger and back in school.

Meet Idris Hafsat, a courageous 16-year-old girl living with Sickle Cell Disorder, who faced the challenges of severe pain and frequent crises, occurring three to four times every month.

Following several months of dedicated therapy at BBF, Hafsat has made remarkable strides in her health journey. She now experiences significantly fewer crises, and the intensity of her pain has notably diminished. Her progress stands as a testament to the positive impact of ongoing medical care and support.

Meet David Alex, a 15-year-old Boy with Sickle Cell Disease. At the 2024 World Sickle Cell Day event, David shared his progress since joining the BBF Clinic.

Before visiting the BBF Clinic, David experienced chronic chest and waist pain. After months of free medications, he no longer has these pains. We are thrilled to report that David’s health has significantly improved.

A joyful moment captured as some children receive a free medications during the community health fair.

What People Had To Say

Comments from attendees and beneficiaries at the World SCD Community Outreach

Godwin Negedu, Operations Manager at EpiConsults, highlights the necessity of increasing awareness about sickle cell disease.

Solomon Adomi praises the Brain and Body Foundation for their efforts in providing free medications to children living with sickle cell disease.

NYSC Corper Jonathan Sunsuwa shares his experiences at the BBF clinic, where he assists children suffering from sickle cell disease.

Head Volunteer, Goodness Nwakwasi, discusses the significance of the 7km Red Walk aimed at raising funds to provide medications for children with SCD.

A joyful moment captured as some children receive a free medications during the community health fair.

Support Our Fundraising Goal

Raising N30,000,000 Million Naira (approx. $20,000 USD)

This 2024 World SCD Day, BBF set an ambitious goal to raise N30,000,000 million naira. These funds will be crucial in providing free medications for children with sickle cell disease. Through your generous contributions, access to proper medication can significantly improve the quality of life for these children affected by the condition, helping to manage symptoms and prevent complications.

How You Can Help

Your support is vital in achieving our goal. Here are ways you can contribute:

  • Donate: Every contribution, no matter how small, brings us closer to our target.

  • Volunteer: Offer your time and skills to help organize and run the events.

  • Spread the Word: Share information about the need to tackle sickle cell disease and our fundraising goal with your network of family and friends.

Why Your Support Matters

Sickle cell disease is a severe hereditary blood disorder that can cause intense pain, anaemia, and other serious health problems. Children with SCD face numerous challenges, but with the right support and treatment, they can lead healthier, more fulfilling lives. By providing free medications, we can alleviate some of the financial burdens on families and ensure that these children receive the care they need.

Donate today!

Let’s come together to make this goal unforgettable and impactful. Your participation and generosity can change lives and bring hope to many families.

For more information on how to get involved or to make a donation, please visit our donation page.

Together, we can make a difference. Thank you for your support!